Hi, I'm Morgan.
My father was diagnosed with Parkinson's disease thirty years ago, and for most of that time my role was clear: daughter, emotional support, and Scrabble opponent.
About two years ago, I was “promoted” to primary caregiver. (Dad jokes that I'm good at getting promotions in my volunteer work.) Laughter is my best medicine, but I won't lie — this journey has had some seriously tough, sometimes heartbreaking, moments. It has also been one of the greatest honors of my life. Living both roles taught me a few things:
- Primary caregivers really can't take a break — mentally, and sometimes physically.
- Secondary caregivers and family want to do more, but are unsure how.
- There is nowhere for the small things to live.
- One medical change can take 2–6 hours of updates between pharmacies, doctors, and family.
- Logistics fatigue is real, and it can change how we interact with the people we love most.
- The primary caregiver usually talks to doctors the most, leaving major decisions on one person's shoulders — especially when decisions need to happen fast.
With no good system in sight, I tried to create my own: countless group texts, Google Docs, and Apple Notes… and it felt, well, not very organized or collaborative. I wholeheartedly believe every caregiver and patient deserves a better, more supported journey — and maybe permission to take a break and laugh at the situation every once in a while.
Adley began with my own experience, but it has been shaped by hundreds of conversations with patients, parents, spouses, children, friends, aides, nurses, and doctors. We built it together, with a shared belief that care deserves stronger support. For my family, it means better care for my Dad and for ourselves — and I hope it brings the same to you and yours.
In it together,